When I woke today, my body didn’t respond to the usual mental command to move. That’s a little unusual, but not so unusual that it’s alarming any more. I know that if I concentrate on individual muscles, and really work at it, I can move, then once I get started things begin to work more normally after a while. After I started stirring around on the bed, working up the strength and coordination to sit up and find my glasses, I spoke to my son, Doug, and asked him to start a pot of coffee.
First thing he did was reach for a remote and start the CD that he had cued up ready to play. As soon as I heard the opening of “Summer” from Vivaldi’s Four Seasons, played by David Garrett, I realized why Doug had been going to the mailbox every day this week. He had been anticipating a shipment from Amazon. We had heard David Garrett interviewed on NPR a while ago, and listened to some clips from his music. Both of us liked it, and apparently Doug decided to buy it. Of course, while he was at it, he ordered an expansion pack for one of his favorite games, too.
The morning paralysis was just the beginning of a day that has turned out to be one of the biggest M.E. flareups in recent months. One body part or another has been either malfunctioning or hurting or numb or tingling all day. The best thing I can say about all of that is that it has been affecting mostly my skeletal muscles this day, and not my eyes or my breathing. I’m thankful for that.
Other than the annoying physical symptoms, it has been a wonderful day. One small joy was finding another reasonably amusing and watchable movie in the box of 50 Drive-In Movie Classics that I recently borrowed from Greyfox. I have watched a couple of stinkers, and have viewed the first ten to thirty minutes of a number of films I just didn’t want to sit through in their entirety. This one today was originally titled The Polk County Pot Plane, changed to “In Hot Pursuit.” With an unknown cast and production company that’s not been heard of since, full of chase scenes, corny country humor and both accidental and murderous death, I still found it watchable if not especially praiseworthy. In that collection, just watchable is high praise.
I have listened to the David Garrett CD at least half a dozen times and won’t tire of it for a long time to come. That’s one of the bigger joys of the day. I also got a first look at some of the concept art from Tim Burton’s Alice in Wonderland. This alone is worth the price of admission to this mixed up mess of a day for me.
Another pleasure throughout my day has been an occasional nibble broken off my super special homemade chocolate bar. It’s truly ugly, but tastes so good! I used the cheapest chocolate I could find, Baker’s Unsweetened, melted it in the microwave, stirred it up with a little bit of goat milk, an even littler bit of butter, maybe 20 or more packets of Splenda and some pure vanilla extract, and ended up with over half a pound of guilt-free chocolate. Doug agrees that it is both ugly and tasty. Unfortunately, the bite he tried contained some bitter chocolate that hadn’t gotten thoroughly mixed with the sweetener and stuff. I need to perfect the recipe now that I know it works, and need to come up with a better prep method. One moment, please, while I go break off another chunk….
Mmmmm… all in all, on balance, it has been a great day. Life is good.
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