When I write about brainfog, sometimes I wonder if the word conveys any
comprehensible meaning. When I write through the fog, from within
the sensorimotor deficits, I wonder if I’m conveying anything
comprehensible at all. When I posted the entry yesterday about
the San Francisco Earthquake of 1906, I knew it wasn’t what I wanted it
to be, what I would have made of it if I had been more capable. I
copied and pasted long passages that I otherwise would have digested
and summarized, with just a few brief quotes.
It always helps me accept my own deficits when I read about how badly
the disorder disables some other people. It is a rare and
extremely bad day when I cannot use a keyboard at all. Even when
I can’t pour a glass of water without spilling it, or put wood into the
stove without burning myself, or can’t listen to the sound of my son’s
voice or the radio without wincing in pain, I can usually type.
Of course, sometimes after I write through the fog, I go back later and
feel acute embarrassment over what I’ve produced.
Greyfox tells me that even on my worst day I do better than a lot of
people can do on their best days. I don’t know about that; it
seems to me that a lot of people don’t try very hard. If what
Greyfox says is true, it’s something else for which I am grateful,
besides life itself, and the crazy relapsing /remitting course of this
disease that brings me good days sometimes.
Of all the many and protean symptoms of this disorder, it is the
brainfog I mention most often here. I suppose that is partially
because it is the symptom with the most direct bearing on my
blogging. It is also the only excuse or explanation I have for
those sometimes lengthy periods of time when I am unable to do readings
at KaiOaty’s site. I suppose that sometimes I could “read”
through the fog just as I write through it here, but it is a matter of
quality control and professional standards. I don’t want to do
less than my best for my clients.
I am distressed at the amount of work that has piled up since the last
time I felt up to major housecleaning. What is even more
distressing is that occasionally I find in the clutter something, such
as a mail-order request for a reading I’d forgotten I had received, or
an unpaid bill I can’t recall seeing before, or a letter I should have
answered weeks ago.
Then there is my jewelry-making work. I look at my materials,
visualize designs and imagine putting them together, but I have learned
to wait for the flareup to end. If I don’t wait, I end up
frustrated and often waste things in the process. If I wait, the
inspiration evaporates.
If I weren’t so brainfoggy, I might not have interposed those last two
paragraphs after getting off the track of what I had started to say
about the fog. I intended to mention a few of the other symptoms,
ones I seldom mention because… what’s the point? Well, the
point is once in a while full disclosure feels good, and maybe my
sharing my experience will help someone else somehow.
I seem to be losing my voice today, going from deep and froggy to high
and squeaky and back again until it fades out altogether. As
usual, my throat is sore and I have swollen lymph
nodes in my neck and armpits. My neck feels weak, too weak to
hold up my heavy head without strain. The neck muscles burn and
the head feels tender, hot and thick. Any muscles I use
tend to spasm. That would
be painful if I did not know that pain is a message I don’t have to
listen to. I switch off the alarm signal and listen to the
subtler messages beneath that.
Muscles in my back, neck, forearms and hands are hot, inflamed from
being used to keep me sitting erect working at this keyboard. A
muscle in my left thigh is spasming rhythmically for reasons it isn’t
revealing–probably wants to go dancing. If I forget to drag
over a stool and climb up to the high shelf instead of standing tiptoe
to reach it, or if I just point my toes and stretch, a muscle at the inner edge of my arch goes into spasm and
pulls my foot into an odd-looking and uncomfortable C. The
message from that C is the same as the one I used to get from neck and
shoulder muscles before I learned to use a rake or other tool to reach
under the bed instead of sticking my arm under there.
Ever since Saturday’s trip to town, my blood sugar has been in the
tank. I have been hungry, feeling weak and in need of food, but
when I eat I feel sick I have to eat anyway, little bitty meals
of protein every couple of hours to stabilize the blood sugar. If
I forget to eat and let the blood sugar get too low, there’s danger of
losing control and going on a mindless carbohydrate binge. Then I
not only feel sick, I feel stupid, weak, self-destructive and ashamed.
If I take my nutritional supplements, I don’t have such ravenous sugar
cravings, but when the fog is at its thickest, I often don’t think to
take the empty-stomach meds until I have eaten, then I have to wait a
couple of hours, then have to wait another hour after taking the pills
before I can eat and by then my blood sugar is tanking again.
Oh well, I’ve gone on and on long enough on this subject. If you want to know more, read this.
I am going to get something to eat, drink a glass of water,
carefully put another chunk of wood in the stove, crawl under the
covers, lean my head back on a pillow propped against the wall, and
read a book until I’m too tired to turn pages.
Tomorrow
is 4/20. Will I be celebrating? Well, yeah, in a way.
I will be celebrating my abstinence. What I specifically and emphatically do NOT
need, under the present circumstances, is an even more severe case of
the raging munchies, or any more spaciness.
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