April 26, 2005

  • PILLS

    Yesterday
    I finished making up a new batch of “meds”.  These packs of pills
    include prescription meds for asthma, one aspirin a day to prevent
    stroke and heart attack, a full range of vitamins and minerals, mega
    doses of cognitive enhancers, a bunch of supplements that support my
    immune system and combat my chronic fatigue, and, in the dish with the
    yellow bottle top, the glutamine and tyrosine (amino acids) to help me
    balance my catecholamine deficiency.  The picture here shows one
    day’s supply.

    Already today I have taken two packs of pills:  one with a red cap
    (early morning empty stomach) and one with a white cap (morning with
    food).  I don’t like taking pills.  Just looking at that
    picture makes me queasy and I start to salivate the way I do before I
    vomit.  I’m not going to throw up.  I just keep swallowing
    the saliva and after I’ve written enough copy to carry my cursor down
    far enough that the pills are out of sight above the xTools box, the
    nausea will go away.  I don’t puke when I take the pills either,
    at least not lately.  I’ve learned that they taste worse and hurt
    more coming up than they do going down.  I’ve gotten really good
    in this lifetime at suppressing my gag reflex.  One more skill to
    add to my resume.

    The new batch I made up over the course of the last three days (too ill
    and weak to do it all at one go) will last me one month.  Well,
    let’s be honest here.  I made up thirty sets of daily meds.  **aah, the pic just went away; in a moment the queasiness should pass** 
    They will undoubtedly last me more than a month.  I have never
    gotten through an entire month without missing a few doses along the
    way.  When I’m nearing the end of a batch, I count what’s left so
    I can take more of those of which I have the most leftovers and skip an
    occasional dose of the ones I have the least of.

    Weeks ago, probably months ago, my previous batch of meds were almost
    used up.  I had less than a week’s supply left when I started
    “forgetting” to take them altogether for several days at a time. 
    That’s a common pattern for me.  I hate taking pills.  Did I
    mention that?  Each time I make a new batch of packs, I take my
    meds on schedule like a good little girl until I start feeling better
    and then I conveniently “forget” that it was the pills that made me
    feel so well, and I start missing doses or stop taking them
    altogether.  That final week’s supply of the latest month’s worth
    of meds lasted me at least a couple of months.

    At some point in my most recent flare-up, I realized I needed to start
    taking my meds again — not just the prescription stuff that I must
    take to keep breathing, but the whole mess of pills that keep my body
    functioning at a level that never comes up to human norms but can
    definitely be better than I do without the supplements.  This is
    the way my pattern goes.  When the symptoms get scary enough, they
    scare me back into taking my pills.  As is often the case, this
    time I’d let it go so long that It was a struggle to get the new packs
    made up.  I had to find 120 empty bottles and enough lids in each
    of the four different colors to cap them all.  I had to get out my
    pages of notes on what to take, the dosages, and whether they go with
    food or on an empty stomach.  Then I had to go through the supply
    of meds, make sure everything I needed was there and set things up for
    the big fill-up. 

    Finally, I had to screw down all the lids and find a place to put the
    fourth set of color-coded bottles because the last batch only had three
    doses a day.  I had been taking all my “with food” pills after
    breakfast and it was too much, too hard on my stomach, one of the
    excuses I’d give myself for skipping my meds.  I have to set
    things up, you see, to make it as hard as possible for me to makes
    excuses to myself.  I don’t have to make excuses to anyone else,
    y’know — fuck ‘em if they don’t like what I do.

    Still, four times a day is better than six.  When I first started
    trying to kick the sugar jones, back in the 1970s, I took pills six
    times a day, took even more in each batch than I do now, and got less
    benefit from them than I do now.  Two and a half years ago, when I
    started taking the amino acids that let me finally kick the sugar, I
    was deficient in more neurotransmitters than just the catecholamine and
    had to take even more pills than I do now.  All in all, it’s
    getting better.  The more I learn, the better I get at selecting
    the supplements I need, and of course there are things available now
    that weren’t on the market 30 years ago.  Now, if I’d just get
    better at settling into a routine of taking them every day and not let
    myself get so sick before I get scared back into taking my
    pills….  Yeah, right.

    It is discouraging, being so smart and acting so stupid.  This
    self-castigation is another phase of that cycle I’ve been through more
    times than I can recall.  When things start working better and I
    begin to feel well enough to tell myself I was stupid to stop taking
    the pills, it’s early enough in the pill-popping routine and the recent
    malaise is fresh enough in my memory that I tell myself I’ll not lapse
    again.  I’ve done it so many times already that just now my self
    shot back at me, “Oh, yes you will!”  And I probably will.  I
    hate taking pills.  I have to be sick to be motivated to take
    them, or at least so close to sick that I remember how bad it
    felt. 

    I wanna be well, want to coast along feeling fine, not having to
    remember when my last meal was so I don’t wait too long to take the
    with-food pills or take the empty-stomach ones too soon.  Maybe if
    the improvement I get from the pills was greater, I’d be more motivated
    to take them.  If I could run, climb mountains, learn new skills
    and languages as fast as I did as a kid, etc., maybe then I’d remember
    to take my pills all the time.  It’s a big investment in time,
    money and bother, taking those pills.  The benefits are noticeable
    but not spectacular, not enough for the total satisfaction of this
    pathological perfectionist.  When I hit the next peak, when I’m
    feeling as fine as I get, I’ll probably take another pill vacation,
    too.  I’d lay money on that, based both on my prior performance
    and on how good it feels not taking pills all day every day.  I
    just hope that the next time I will get it together to start making up
    the next batch before I get so sick I need them as bad as I did this
    time.

Comments (10)

  • Actually, about 1/3 of a standard asprin tablet per day is all you need to pre-empt strokes. I cut mine in half.

  • I want you to be well, too.  You’re in my prayers.

  • I’ve been tempted many times to toss them all in the trash but I just keep taking them like a good little girl. I had to take a case with all of them to an appointment yesterday and as I was putting them away burst into tears. I actually appologized to the doc for god only knows what.

    Thinking good thoughts your way.

  • Good god.  Looking at that makes me feel queasy, too.  I cannot ever imagine taking even one pill every single day, let alone… that.

    What are the cognitive enhancers that you use?  Are they fish oils, or something else I haven’t yet heard of?

  • Holy shit batman.  When I was reading how to supplement myself I am *sure* it didn’t add up to all of those in one day.  Looking at that made me crave a cigarette, then a drink….sigh. 

  • Awe Susu — I admire that you make effort where so many would not

  • OMG!!  And here i am complaining cause I’m taking 5 a day right now.  I’ll take them cause I know they are making me feel better and I’ll continue with the antibiotic even when I do feel great and it’s only short term.  But this choloesterol pill can jump away for all I care.  I really have a problem with this one especially when it was only a little high and the pharmacy called in for a refill before the prescription expired and they renewed the prescription and didn’t even do any blood work.  Ok enough of my ranting.  Take your pills like a good girl and don’t throw them out like I’ve been known to do.  LOL  I’m supposed to take other meds for a chronic condition but thew those out years ago and felt much better most of the time.  LOL

  • I’m feelin’ ya, SuSu.  I go on “pill vacations”, too, when I’m feeling better (except for my Prozac and NADH, both of which I take religiously).  Big mistake!  Then I have to build myself back up again, otherwise my stomach revolts.  But yeah, it’s expensive as hell, and that is just one of the frustrating things about it.  If only my prescription plan paid for supplements!  (The NADH alone costs $33 for a one-month-supply.)

    Oy.

  • WOW.  And here I’m too lazy and stubborn about pills to even bother with a multivitamin.  I can’t imagine trying to get THAT MANY down!

  • Wow, lots of pills. I only take 8/day, that is if I remember multi-vitamin-always forget that one. Was taking calcium too. Quite the ‘ritual’ for you in organinizing your daily packs-yikes!
    You might already do this, but when I take multiple does, Ihave found it much easier to take my water with a straw–they go down easier that way.

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