October 29, 2004
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break time –
or breakdown time
Lately I’m pushing the envelope, made radical changes in my lifestyle,
trying to gain some independence or at least see if that’s
possible. Instead of following my body’s instincts and just
veging out after yesterday’s trip to town, I let a different part of me
call the shots and I got to work on cleaning the worktable so I can do
some readings, make some jewelry, maybe make some money.I’m scattered. Mind fog is one of the symptoms of chronic fatigue
and “fibromyalgia” or ME/CFIDS. First thing I noticed was that
I’d put a basket of new squash in the area on the table that I’d
already cleared, so I had to move it. Decided the coffee table
was the place for it, but first had to clear space there. That
requires a complete cleaning and rearranging there, of course.
Now there are three baskets of squash and one of apples on my bed, and
a mess of rocks, candles and the usual debris still on the coffee table.After continually bumping into a big storage tub Greyfox scrounged and
gave me yesterday to bring home, I decided the place for it was under
the worktable. That necessitated cleaning out the mess of empty
cardboard boxes, egg cartons, etc., under there. The gate leg of
the table was in the way then. The tub is too wide to go around
it or slip through the space in the middle of it. I had to fold
the leg. That meant I had to move everything off that end of the
table. Some of it got dealt with: either thrown away or put
away. The rest, including the gooseneck high intensity light on
its lead-weighted base, got moved to the other end of the table.Before I could put anything even semi-permanent under there, I had to
clean the floor (obsessive-compulsive Virgo here). Thought about
getting the mop. It’s an old string thing that is very efficient
with my industrial mop bucket with the foot-powered wringer.
Without the bucket and wringer, my grip strength and my wrists are too
weak to wring out the mop. I don’t know where the bucket is,
could be gone for all I know. Last time I wanted to mop I asked
Doug to bring in the bucket. He said, “there’s a hole in
it.” End of discussion. I didn’t bother to explain that the
hole was the most likely reason I have that bucket, probably the reason
the previous owner threw it into the dumpster I found it in. That
time, I used a “disposable” plastic hospital washbasin, scrounged
from a different dumpster, and wrung and stomped the mop as dry as I
could, and left the bathroom floor to dry out in its own time.This time I grabbed some paper towels and spray cleaner and crawled
under the table. Then Koji had to go out, was jumping up on the
door, frantic to get out there and bark at some disturbance in the
distance. Thank the gods and goddesses that I’ve taught him to go
out there to bark. I crawled out to let him out before the
training broke down — that’s part of our agreement. I mean, the
dog has to bark, so I have to let him out or he’ll do it in here.
My legs were trembling with fatigue and burning from the accumulated
lactic acid. I slept only about four hours last night, par for
the course after a fatiguingly active day. As I crawled back
under the table, my muscles were crying for relief.Then Koji was crying to get back in. By the time he was in and
was rewarded with his biscuit for coming back, I was crying. Back
there under the table, blubbering and weeping, smearing dirt around on
the floor, trying to reach a clean paper towel without crawling back
out, I knew I had to take a break. There were three or four
people at one time that I might have called to vent my frustration and
get a little sympathy. They’re dead now and Xanga’s what I’ve got.Now I’ve got to go eat something. The Old Fart says to watch my
blood sugar. That’s wise advice and I need to follow it.
Comments (11)
The author of Seabiscuit suffered from Chronic Fatigue. So do you and one of the silver lining, as I see it, is your xanga which is infinitely more precious because you have the gift of drawing people into your world by how you deal with what you are doing in the here and now, coping with the adversities that you face daily. Strength be given unto you Susu and I’m a witness to your frustration.
aww … life sucks big time – but you know we have to plug on and on, until we cross over. My 83 year old mother has more guts then me when it comes to life, and I am only 52 dam I hope i dont live till 83 .. dont worry, we all go thru this shit -
It seems to me that working till you are crying from pain and frustration is pushing the envelope just a bit too far. You have to take advantage of windows of opportunity, but sometimes those are really tiny casement windows.
WOW!
That sounds like an awful lot for you to do, especially after you were tired BEFORE going into town yesterday.
Please take care of you.
Sympathy you got!
I understand… the fatigue, the pushing even when you are exhausted, the mental fog, the crying exhaustion…. and much more you don’t mention. I don’t suffer nearly as much or nearly as often, and surprisingly it seems to be getting better…slowly… but I’ve fought to control it all my life.
I’m proud of you for getting all that work done.
Now go take care of yourself!
there’s a hole in the bucket, dear susu, dear susu, there’s a hole in the bucket, dear susu a hole!
do you remember that song from when you were a little kid??
as a proud, card-carrying diabetic, i can say that if you don’t watch your blood sugars, you’ll feel like pooooopy! (don’t i have such a fine command of the english language??)
oh dear…I don’t know anything about your physical ailment…but I know your suffering…I feel so badly that your in pain…I wish I could make it go away for you…just the thought of you under that table in so much exhaustion that it brought you to tears…how awful for you…I pray for you that you feel well and strong and that there is something that can be done to beat this dreadful chronic fatigue thing…I know it doesn’t help, but please know that I care for you and wish you well my xanga friend…huggs…Sassy
for some reason i feel like crying with you in that moment.
You are simply one of the most amazing women around and I’m always so impressed with your strength and touched when you show your weaknesses. I’m sending you beautiful light and energy. I wanna take you under my wing and sweep you away where you wouldnt have to mop on your hands and knees.
damn…raluvs beat me to the song. i learned it watching sesame street with sarah.
aside from your pain, the only thing i could do while reading this was chuckle at your accumulated stuff. i am, one of the worst packrats i know. however, i am by far eclipsed by my oldest brother (and traveling companion) whose birthday happens to be 9/17. yah. so i know.
oh GEEZ, Kathy!!
Please don’t do that…. now I’M crying too! Go easy, my friend 